Resource Links

Whether you’ve recently been diagnosed, could write a book on life with acromegaly, are helping someone else manage their symptoms, or are simply hoping to learn more…welcome!

We’ve curated a list of resources we hope you find helpful no matter where you are on your journey.

If you have additional resources to share, please contact us.

Canadian Resources

Canadian Organization for Rare Diseases

Brain Tumour Foundation of Canada – Pituitary Adenomas

International Resources

Acromegaly Community

Acromegaly – UCLA

Endocrine Society

Familial Isolated Pituitary Adenoma (FIPA) Patients

Genetic and Rare Diseases Information Centre (U.S.) – Acromegaly

Gigantism and Acromegaly – Medscape

Mayo Clinic – Acromegaly

National Organization for Rare Disorders – Acromegaly

Neuroendocrine Clinical Centre – Massachusetts General Hospital

Pituitary Family Resource Center

The Pituitary Foundation – Acromegaly

The Pituitary Network Association

Pituitary World News

Society for Endocrinology

Family & Caregiver Resources

Caring for Your Patient with a Rare Disease