With a rare disease, finding other patients to talk to can make a world of difference.
Local support groups across Canada arrange meet-ups, where you can connect with others to share stories, discuss ways to manage your health, explore community resources, and find opportunities to raise awareness.
Contact: Peggy McDonald
Contact: Dianne Sauvé
Contact: Mark Logtenberg
Contact: Adam Vagi & Doug Walker
Contact: Deanna Badiuk
Email: firstname.lastname@example.org or email@example.com
Don’t see your region above? Contact us–we can help connect you to others in your area and offer guidance if you’d like to start your own support group.